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June 30, 2005 Welcome to Holland?
A great article from one of my favourite magazines: Have a Nice Trip: Metaphors for parenting a special-needs child Just a little something to remember the next time you might be tempted to say something "comforting" to someone who is having a radically different parenting experience than you are. Not directed to anyone here, though yes, I have been the recipient of this odd piece from time to time. Not all of us deal with things the same way or use the same metaphors to understand our lives. And that's ok. Right? Edited to add: Frances is not disabled, and she's not sick; she certainly is not autistic. I don't want to seem as though I'm trying to put my experience into the same category. Clearly it's not. But just because it could be (much, much) worse doesn't mean I need to feel and demonstrate gratitude all the time to the expectations and satisfaction of other people who have normal, healthy, full-term, normally growing, typically developing kids. And yet, from time to time, such parents have felt free to let me know (in subtle and not-so-subtle ways) that my emotions and my reactions to my experience are inadequate or wrong, because I'm not as happy or as positive as they think I should be. Sometimes that involves sending me a link to or giving me a copy of the ever-famous "Welcome to Holland." Sometimes it just involves telling me that I'm "too negative" or that "things could look better depending on YOU." Welcome to Holland is a lovely piece, and Moreena I know has used it to great effect on a blog that I read just about every day and thoroughly enjoy. Many parents derive comfort from it and find that the metaphor is appropriate to their lives. But I still resent the judgementalism of anyone who is having a normal experience and feels free to tell me how I should feel about something that they have never and will never live. This article is for them. To them I say: If you haven't walked a mile in my shoes, then stop complaining about my pace or telling me that I should transport myself to Italy through sheer willpower. Or at the very least, think before you say something similar to someone else. Posted by Andrea at June 30, 2005 12:58 PM under Being Small , Mothers and Anti-Mothers , Web EMAIL this entry (comments fields are below this section) Comments You are right. We don't know what it is like to the degree you do. We can know people with similar situations. We can know certain delays in our own children. But we won't know. All I can do is listen and offer support. And I will :) Posted by: Running2Ks at June 30, 2005 1:09 PM
Thank you for this post and the link. Posted by: liz at June 30, 2005 2:49 PM
Thanks for the link, Andrea. Particularly chilling reading after that debate we had with the woman who advocated inducing early live births (at 24 weeks) instead of late-term abortions... Posted by: Phantom Scribbler at July 1, 2005 8:16 AM
This is a great article, Andrea. Wow. You have really been on track lately pointing to all sorts of great reads and thought-provoking debates. I think every family with a child somewhere off the "normal" track (I know, that sounds weird) has read that article and felt alternately inspired and pissed off about it. It really does not come as a surprise at all to learn that Emily Perl Kingsley also writes for Sesame Street--a place that does not really exist, but doesn't it look great? I think her version of this life is really the idealized one. But, hey, there's nothing wrong with shooting for an ideal, is there? Posted by: moreena at July 1, 2005 7:52 PM
Moreena--thanks. I wrote this initially and then thought of postcards to holland and got worried that you might be upset. Or wouldn't like it. So I'm glad that you enjoyed the article (though maybe 'enjoyed' is the wrong word). No, there's nothing wrong with shooting for the ideal. And like you said, I found it both inspiring and irritating. But the problem I have with it is not so much the article itself, as it's coming from someone who's "been there, done that." It's when it's coming from someone who's baby or child is completely normal yet still feels like they can give you advice or whatever--*that's* what gets me. I remember when my cousin died (at 5 years old), someone came up to my aunt at the funeral and told her she shouldn't cry or be sad b/c she still had 2 healthy children. Not that he had kids of his own, alive or otherwise, but he still felt like he could tell her what the appropriate reaction should be: Something that made him comfortable. At root, it's different in degree but not in kind. I've had interactions like those with people in my life, and when I get furious and upset they seem to think it just proves that I really am as crazy as they think. Maybe if more people read articles like this one they'd see that it's not some strange fringe minority, but a common feeling and a common reaction among women who have kids who don't fall on the chart--whichever chart that might be. Posted by: Andrea at July 2, 2005 7:12 AM
I think the real issue with the Holland story, and the reason that it both inspires and irritates, is that parents of these kids have two conflicting desires. One is that their child gets to live as normal a life as possible and doesn't feel that their particular issue is a hardship for the family - and that's where the inspiring bit of Welcome to Holland comes in. We're not freaky families with freaky kids - we're just living in a different place and a normal family, too, in our own way of normal. On the other hand, parents also want it to be recognized that it can be damned hard sometimes. Or all the time, whatever the case may be. We get tired of people seeming to undercut and underestimate our efforts, or the difficulties/pain that our child is facing. And that's when we say things like "Holland, my ass." I've never had someone give me this piece that wasn't another parent in the same boat, but I have had lots of people act as if transplant was the cure and now all her problems are over. If only. So I think that, once again, you have it right on the nose. The problem is not really with the piece so much as who it's coming from. Posted by: moreena at July 4, 2005 7:11 AM
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Change is God (Octavia Butler, Parable Series) “I expect to pass through this world but once; any good thing therefore that I can do, or any kindness that I can show to any fellow creature, let me do it now; let me not defer or neglect it, for I shall not pass this way again.” Email Frances! frances AT athenadreaming DOT org You can email her mother too (that's me):
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