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August 15, 2007

Invisibility

There is a really cute guy who works in my building. Tall, sandy ginger hair, nice features, broad shoulders, slim. And he doesn't have arms. He has hands, but his arms are about eight inches long, maybe a bit shorter. I see him around, normally buying muffins from the muffin shop in the underground mall.

I imagine if one day we struck up a conversation, he would want neither for his obvious difference to be ignored ("Can you pass me a napkin, please?") nor would he want it to be front and centre ("and look at you! How do you cope? You poor thing, I could never do it"). It would just be there, a part of him, but not all of him. He's probably proud of some of the adjustments he's made and how he's sorted his life: born without arms, at a not insignificant natural disadvantage, but there he is, eating a muffin at his desk just like everybody else.

And not that it's the same thing at all, but I feel that way about being diabetic. I have an insulin pump. You'd never notice the difference, unless you were close enough to see* the tubing popping out over the top of my jeans, or were around when I brought it out to test my blood sugar. I am different, though. I know I'm different. I don't expect or want anyone to not-see my diabetes; I'm proud of how well I've managed it for the last fifteen years and it's a big part of my life. I also don't want anyone to focus on it exclusively; it's not all of me, not by a long shot (no pun intended), and you don't know anywhere near as much about it as I do so please don't tell me what I should and shouldn't eat for lunch.

But where this hits home for me is with Frances.

We went to visit Erik's family in Montreal a few years back for Thanksgiving. Frances was walking confidently by then so she was probably almost two; she has two cousins in Montreal, one a few years and one a few months older than she is, both significantly taller. Frances idolizes her two big boy cousins. On that trip she followed them around everywhere trying to play all the same games although, with her short little arms and legs, she couldn't keep up. At one point we watched them playing with one of those LeapFrog fridge magnet toys with the things you have to plug into the toy to make it sing or say a letter, and Frances was between them, and her itty-bittyness was overwhelming. She was at least eight inches shorter than the cousin who is only two months older than she is.

My SIL said, "It's only because T is so tall. If he were a normal size for his age, you wouldn't even be able to see it."

What my SIL meant was not, "Her size is trivial to me; I don't notice it," although I'm sure that's how she intended it to be taken. How it sounded, and what it really indicated, was more like, "Her size makes me so completely uncomfortable that the only way I can manage it is by pretending it's not there." What she meant was, "The only way I can accept Frances is by pretending that she's not really different, that she isn't who she is."

I've never heard anyone say, "Oh my goodness, does Frances have gorgeous blonde hair? You know, I never noticed." Or, "Really? She has big blue eyes? I just never saw them." Or, "An infectious giggle? You don't say. That kind of thing is completely invisible to me."

But: "Oh, is she short? I just didn't see it. You know, I don't see those kinds of things."

If I hear that, I know the person who is saying not only saw her size, but didn't like it. Was made uncomfortable by it. Sees it as an issue or a problem significant enough that it requires commentary and management. What it tells me is that it's the only thing about her that you did see.

I love her size. I wouldn't trade her for a boatload of normal babies. I wouldn't make her 'normal' if I could. I don't want you to erase her difference in your mind, or pretend to, any more than I want you to erase your perception of her incredibly social and charming personality. ("Wow, can she clearly articulate complex sentences and strike up conversations with complete strangers who are totally captivated by her? You know, I never noticed.")

Because people only render invisible things that they think are problems.

I believe it is the same with any potential differences between two people.

I know you are going to tell me that this is different, because being born without arms or born a dwarf is a problem, a disease, something wrong. Anyone who tells me to my face that there is something wrong with my little girl's size is going to get a punch in the nose. It's not wrong, it's not bad, it's just different, just not like you. The only reason it presents as a problem is because every manufactured item in our manufactured world is manufactured for persons of average stature. So the built environment, which is the primary environment most of us navigate day to day, is overwhelmingly huge for her, and she needs help to manage it sometimes. If she lived in a house scaled for her and played with toys scaled for her, it's you and I who'd need help.

The underlying attitude towards difference is identical: we only render invisible things that we believe are problems. We note and comment on the beautiful child sitting quietly in the airport waiting lounge (Dear Readers, I have received many such compliments on behalf of my little girl), but unless we are rude, we don't "see" the one throwing the tantrum in the lineup. We avert our eyes and pretend it's not there.

A lot of well-intentioned, good-hearted people have taken a particular approach to discrimination and prejudice of all kinds: they don't "see" it. They have absorbed a message from somewhere that since race, size, age, sex, orientation, etc., shouldn't be impediments to a person's life, shouldn't matter in our assessments of them as human beings, that we shouldn't "see" them. But this operates on the same basis as the old underlying prejudice. We haven't so much confronted or changed the old associations between difference and defect, as managed our confusion and discomfort by pretending that the difference isn't there. The better solution is to confront and disconnect that association, to train ourselves that difference does not equal defect; and the only way you can do that is both by seeing difference, and by being willing to be called on any ways you may unconsciously be acting as if it implies a defect.

A few years back the Toronto Star did a study on police pull-overs and found that black people were far more likely to be pulled over, more likely to be charged, and more likely to be arrested, than white drivers. The police association reacted with outrage: "How DARE you imply we are racist! We would NEVER do such a thing! There is a mistake, the statistics are wrong, you've interpreted them wrong. Racism does not exist in the police force! OK, maybe a few bad apples." (The infamous Bad-Apples defence.) They took the paper to court (the paper won, incidentally).

Of course there is racism in the police force. But it is unconscious. The police officers aren't sitting in their cars thinking, "Hmm, black male driving a nice car in a ritzy neighbourhood, looks suspicious. He's supposed to be poor. I'd better pull him over." Something just twigs that says "not quite right," and he acts on instinct. But the unconscious instincts are racist.

Our intentions are good. We've made this unconscious because we recognize that it's ugly and obscene. We know we should be better than we are, and we want to be, so we hide the horrid bits in the shadows and refuse to look at them. Convincing ourselves that we don't see difference and that we are free of all biases ourselves is one of the ways we do that. But what happens to something you stick in the shadows? It grows, it becomes more powerful, more difficult to confront, more difficult to root out. It becomes a bogeyman, a monster. It becomes something we dare not name.

Having biases and prejudices doesn't make you evil. It makes you human. The only way to deal with them is to take a flashlight to those shadows, to the musty, dim, ignored, cramped and moldy corners of your own head, and be prepared to stare those monsters down.

~~~~~
*Apologies to my non-sighted readers for the continuous use of the verb "to see" as a stand-in for "to notice." It is a part of the conversation elsewhere so I carried it here. I imagine it could be obnoxious.

(This is a continuation of last week's "Hmm," if it isn't obvious.)


Posted by Andrea at August 15, 2007 10:57 AM under Being Small

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sing it, sister.

with regard to the parallel conversation on race, and "seeing" difference, my favourite comment on it comes from the poet Langston Hughes, directed towards his white teachers during his studies in NY (i think...?). he said something along the lines of "always forget that i am black. and never forget that i am black."

to me, holding that balance of trying to see beyond whatever preconceptions we may have in regard to a persons' differences from ourselves, while still respecting that those differences exist and impact the way that person lives in a world that implicitly advantages some sizes, races, classes over others, is key. and exciting. and always challenging.

Posted by: Bon at August 15, 2007 10:19 AM

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Let me come in as one of "those" people. I don't think that it's necessary or even desirable to erase differences in people. No one wants homogeny.

When I have said in the past, that I don't see color in a person, what it means is that color does not come into play when I think of their worth as a person. It does not mean that I don't recognize that there are vastly different type of people in the world, and thank God for that.

I guess what I am trying to say is, why do we always have to hone in on the differences in us, as if they are the sum of a person as opposed to looking at the whole picture?

Certainly Frances is small, and it presents her challenges that I will never have to face. This brings to light her other amazing qualities, that you paint in such a beautiful light here, her perseverence, her confidence, her humor. Those are all pieces of her too, no?

Just like I am diabetic as well, but I would hate to think that all future relationships in my life would hinge on people judging me for something I can't control. I didn't choose to be born white, I didn't choose to become diabetic. People don't choose race, it just is, so let's celebrate the differences, find the similarities and try to understand eachother more instead of making it all a point of contention.

Posted by: flutter at August 15, 2007 10:38 AM

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Love this.

I think a big part of the problem are labels like racist, ageist, sexist that have a way of drawing lines and setting people apart. We are all all of those things, by nature. That's hard to admit. There's a reason why, as a child, when I drew a family it had a mother and a father and three children, all of whom were pale and able-bodied (though one might have had an exceptionally large, swollen, hemorrhaging knee, for instance). That's what I knew at the time. I have since grown and broadened my definition of family. And "normal".

It's how we act upon our human instincts/prejudices or whether we check our own thoughts for any basis in reality that marks our true character. But there's a lot of pain and confusion in learning that lesson that so many of us are still learning.

Posted by: NotSoSage at August 15, 2007 11:02 AM

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The world we live in is to fricking judgemental. Children are raised judgemental by their parents and even by society. I do not beleive we will ever live in an unjudgemental world. I'm different. My son is different and we are judged everyday. I "feel" the judgements peircing my body as we walk by people who just don't understand or who haven't been enlightened to what it is to be different.
This was a good post.

Posted by: LauraJ at August 15, 2007 11:22 AM

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Great post. I can't tell you how many people have told me that they "don't see" my kids' race. It's ridiculous. I want them to see the brown of their skin-it's gorgeous! Just like their beautiful smiles, or their polite ways. Any time anyone says they don't see me kids as black, I ask if they see them as young women, or athletes, or any of the other things that they are. I would definitely see Frances' size, and find her amazing both because of and in spite of it.

Posted by: yankee,transferred at August 15, 2007 11:32 AM

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Thank you. This entry helped me heal a bit from a bad family vacation. We just had our first 'get-together' after little miss was diagnosed with diabetes (2 years old). I was hoping for a week of nurturing. We were ignored. It hurt sooooo badly to be "treated like normal" that I felt it as being ignored, rendered invisible, unloved. I also felt it as hostile. But your writing helps me think that maybe it was just everyone being painfully uncomfortable. And they thought the best way to deal with the new situation was to just ignore it.

Thanks to you, I may be able to talk to my MIL again!

Posted by: Jennifer B at August 15, 2007 11:53 AM

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I have the same sort of view as flutter. I have said "I don't see race," before as well, and while I only meant it as "your race (or religion, or orientation) does not influence me on my opinion as to what kind of person you are, or how much I like or respect you," I do see where it can be taken condescendingly. I never meant to exclude with that statement -- on the contrary. Was it a simplistic description? Yes. Do I notice things like race? Obviously, yes. I am sighted; I can physically SEE it. Does it matter to me in reference to whether that person is worth getting to know or not? No.

I don't ignore Frances' size. Would I be so crass as to pepper you with questions on what's "wrong" with her upon first meeting? I would hope not. Like YT said, I am amazed at Frances, and not just because she's thoroughly adorable. I think she is smart, loving, cute as hell, and how tall or small she is factors into none of that. Do I see that she's small? Of course I do. As I said before, I am sighted; I see it. I worry about her existing in this world that's too large for her, and I worry about people who will be rude or cruel to her, but do I dislike Frances for her size? God, no. I think she's amazing, and her size, while a vital part of who she is, does not make up all of who she is. She has so much more to offer.

I apologize if I offended you in any way. It was never my intention. And, I thank you for pointing out how narrow that view can seem. I never put that connotation with it before.

Posted by: KLee at August 15, 2007 12:22 PM

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Andrea, this is the best piece I've read on this topic. I have been struggling with it & this really helped me get some perspective.

I also work with a man with no arms -- that is, with about 1-inch long arms. When I first met him I was shocked and felt uncomfortable; I knew it was rude to stare but I really wanted to check him out! Also he's defensive and has a rough personality, so that made it harder to know how to interact with him. But then we got put on a project together and became friends. He's a computer programmer and he has all kinds of modified equipment. He also has a modified Harley motorcycle and a modified minivan. Anyway, after awhile I didn't "see" his tiny arms in the same way that after awhile you stop noticing that someone is strikingly beautiful. I was aware of it, but it was in the background, not worthy of comment. He managed so well, it was easy to forget. Then one day we were in a buffet line and a well-meaning person came up to Jeff and whispered, Can I help you with your tray? Jeff was incredibly graceful, saying no thank you, I think I've got it, but I was SO embarrassed on his behalf. Why would a 40-year-old man need help carrying his tray?! I think that was the first time I truly realized that dealing physically with his overly-small arms was not all that hard -- it was dealing with other people that made his small arms a disability.

Posted by: Jennifer at August 15, 2007 12:54 PM

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Actually -- it's not that dealing with other people makes his arms a disability. It's that other people remind him that he's "disabled."

If I had a broken arm & was struggling, I'd hope that someone would help me carry my tray. You know, that the person standing beside me in line would say simply, Can I help with that? And if I had tiny arms & was struggling, I'd hope that the same would happen. Not that a person would deliberately cross a room and whisper -- as if it were shameful -- Do you need help?

When I lived in Russia men were always offering to help with things that I OBVIOUSLY did not need help with, like opening doors or carrying a small bag, just because I'm female. I think they meant to be respectful but I found it insulting. Being female does not make me weak! I can do this myself; I do it myself when you're not around! Leave me alone!

Anyway. Sorry to hijack the comments. As you know this is difficult topic.

Posted by: Jennifer at August 15, 2007 1:09 PM

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You say it so well. Thank you for the insight. You have made me more aware of my unconscious reactions to the "other." Wonderful post. I put it up at Mommy Blog Roundup: http://mommyblogroundup.blogspot.com/

Posted by: Mean Mommy at August 15, 2007 2:20 PM

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yes, yes, and yes....this post is one of the many reasons why I love reading your blog, even if I don't often have time to comment.

and as for your apology, I will say that sighted people often have more of a sensitivity towards using words like "see" than those who are visually impaired. In fact, most people who are blind/visually impaired similarly would "see" what you are saying.

Posted by: Carolyn at August 15, 2007 8:34 PM

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Yes yes yes! Great post.

A few years ago my niece said to her mom incredulously, "Grandma's bum is SO big!" And her mom shushed her... that's not nice. I would have hoped for something more along the lines of, "Yes, it is. And isn't it great all the different shapes and sizes that people come in?"

I think it's exactly the same phenomenon as you discuss so articulately here. I found South Africa quite refreshing because people talk about race openly. There is some racism still, but at least nobody's hiding it. Here, I've seen people, when tasked with describing people, literally look around behind them, lower their voices and say, "he's black" as though noticing it is so evil.

Really great post!

Posted by: cinnamon gurl at August 15, 2007 8:45 PM

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That was amazingly well-put. We are all at some point or another caught trying to decide HOW to deal with someone's difference. THe answer is not easy, but the next time I feel that way I'll remember this line:

"Because people only render invisible things that they think are problems."

THanks!

Posted by: Emily at August 16, 2007 7:36 PM

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Go Berserk




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